Will Capps

Posted by & filed under Make a Dream Come True.

Hello and thank you for visiting’s Will’s service dog page. Our family is on a new journey to help our son Will – but first, a little bit about our family!  When I was a freshman in high school, I started dating a junior named Adam. What started out as just a high school crush quickly turned into something more serious. After graduation, Adam joined the Air Force and when I graduated we tied the knot at 18 and 20 years old.

A few years and deployments later, we had our first son, Benjamin, who is now 4. When Ben was 2, we found out I was pregnant again with another boy! We were so excited. Adam got orders to San Antonio, Texas after 6 years in South Carolina. We bought a house, made new friends, and got ready to welcome our new baby boy.

On November 8th, 2017, William Truman Capps was born. He was perfect. He passed all of his newborn screens with flying colors. He was totally healthy! We lived in a chaotic bliss as we adjusted to life with two little ones.  On February 22nd, 2018, that bliss came to an abrupt halt. Will started doing some weird, repetitive leg twitches and after about 15 minutes of debating on what to do, we called 911 and Will took his first ambulance ride at 3 months old. We were SO thankful when we saw pediatric neurology and was told that they didn’t think it was a seizure and instead was just some weird tick that some newborns do. We felt the weight of the world lift off our shoulders as we took our once again healthy boy back home. 19 days later, Will had a 1.5 hour episode that couldn’t be argued was a seizure. They ordered a MRI which came back a bit abnormal, but nothing that suggested this wouldn’t be something he would outgrow as he got older. Just to be safe, they ordered genetic testing to know exactly what we were dealing with. After the longest month of our life with seizures in between, we had our follow up appointment.

The doctor said Will had Dravet Syndrome. We had never heard of it before. As he explained the severity of the condition, pretty much worse case scenario, my ears started ringing and I couldn’t concentrate on what he was saying. I held my perfect baby boy in my arms, now 6 months old, as the doctor listed off what would happen to my baby. Developmental delays, cognitive and physical. Missed milestones starting around 2 years of age and declining from there. Might not walk. Seizures lasting hours, medicine resistant. Will never live alone.

I couldn’t believe it.  We had been blindsided. We just knew that it would come back with something he would outgrow and go on to live a totally healthy life. My heart was broken.

Fast forward to now, the Air Force relocated our family back to Missouri to be closer to family and have help taking care of both of our boys. Will has had countless hours-long seizures since then, most of them requiring hospitalizations for days and many requiring him to be heavily sedated and intubated. He averages about one severe seizure every two weeks. My mama heart has been broken time and time again, but my sweet Will has never had his happy spirit broken. He’s not walking, but crawls with the best of them. He laughs at his brother and recovers from his seizures with willpower that inspires me to be stronger.

While we can’t do much to change Will’s seizures, we were recently accepted for a service dog through 4 Paws For Ability. The dog will help alert us to Will’s seizures and hopefully allow him to have a bit of independence and semblance of a normal childhood.  It costs 4 Paws more than $40,000 to raise and properly train a service dog with our son’s specific needs in mind.  Families are only responsible for a portion of the cost or $17,000 towards Will’s service dog. Our fundraising will help us obtain a service dog through 4 Paws for Will.

If you can help us with a donation in Will’s name, please visit the 4 Paws Donation Page (http://www.4PawsForAbility.org/donate-now). Include Will’s name on the donation as instructed in the “Description” field of the form on the second page of your Authorize.net donation.  Donations can also be made by mailing a check with Will’s name on the memo line to:

4 Paws for Ability
In Honor of Will Capps
253 Dayton Ave.
Xenia, OH 45385

$17,000 with a one-person income on a military paycheck won’t let us be able to do this for him ourselves. Any and all donations are welcome and so appreciated. Thank you for helping us help our son!