Background
I can still clearly remember the day I envisioned 4 Paws For Ability and began the journey toward a dream that would help people like me who had to live with disabilities. It was fall, and my service dog, Ben, and I sat behind our Ohio home watching the leaves drift lazily from nearby trees.
My despair as a young woman with Myasthenia Gravis (MG) had finally disappeared because of this amazing dog’s qualities. The struggle to get Ben was worth every shed tear and every gut-wrenching disappointment along the way.
No longer on a ventilator, I watched him play, and began dreaming and planning for an agency where anyone with a disability would not be turned away.
I thought of the long waiting lists many agencies had. I knew there were people with disabilities who would rather work to raise the money for training than sit on a three-year list waiting for a free dog.
And who could have known the rest of my dreams: the silent ones? Children. A family.
In 1987 I was a carefree young woman, going to school to become a social worker. In addition to my full class schedule, I worked full-time in the field of mental retardation. Like most college students, I existed on little sleep and was always tired. Looking back on that time, it is easy for me to see the progression of the disease, but at the time I shrugged off the symptoms, blaming them on my full schedule.
Slammed by Myasthenia Gravis
All of that changed when difficulty breathing became respiratory arrest. From that day forward I began a life journey far different than the one I envisioned in those early years. The disease hit hard and fast. It quickly robbed me of any meaningful life. Long hospital stays wore heavy on my relationships with others and all but my closest friends disappeared from my life.
In 1994 I had been dealing with what was diagnosed as Myasthenia Gravis, a rare neuromuscular disease, for almost seven years. Treatment had not been effective, and the disease hit again, this time robbing me of the will to live.
A friend of mine tried to find an agency to place a service dog with me, but agency after agency turned us away. It seemed that these agencies with their long waiting lists had developed guidelines that often excluded those they deemed too disabled or not disabled enough.
I spent much of my life at that time respirator dependent. The responses from the agencies were always the same: there were others who had more ability than I, or others they felt their dogs would assist in reintegration into the community.
Finally one agency accepted my application and placed me on their waiting list. Eighteen months later they called to tell me they had a match, and they sent a woman out to see what tasks the dog would need to learn. Two weeks later I received a letter in the mail:
“We are sorry,” it said, “but our agency guidelines prohibit the placement of service dogs with people who use ventilators.”
Why bother staying alive?
Prior to the meeting I had allowed myself to feel a little hope. It was exciting to think of a dog that could, at the very least, allow me some time alone, with the dog being able to accomplish many of the tasks being performed by my personal care assistants.
When that letter came, I gave up all hope. I had often thought of ending my life. In fact, I had saved enough morphine to accomplish the task easily. When I looked at my life, all I could see was death, a long slow death, with each day robbing me of some little pieces of ability I had held the day before.
I now refer to those times as the days of death; it saddens me that I lost such a large chunk of my life. I also see how lucky I was. I had a close friend who refused to watch me die. She dragged me from place to place looking at puppies, trying desperately to get me to once more cling to life and to find the courage to fight for that life.
Enter Ben: the Magic Begins
I had no desire to get a puppy. I couldn’t care for myself; how then could I train a puppy? I’m not sure what happened the wonderful day that my service dog entered my life, but when I spotted him and he looked at me from the back of his pen, the magic began. I took that thirty-pound, black bundle of fur home and gave him the name “Ben, My Courage and Friend.”
I didn’t jump right back into life, but with Ben supporting me I inched closer and closer to life each day. As Ben grew, I faced new challenges. I learned quickly that very few agencies are willing to train an owned dog.
Ben and I had been attending classes at a local dog training school and he was quickly approaching the need for advanced service dog training. However, the club was helpful. Some of the volunteers worked with me, teaching me how to train for retrieval work. I applied to a dog training school in Columbus, Ohio, and they were willing to help.
One of the student trainers worked with Ben, and taught me to train him at home, and train we did! In 1996, I returned to work, with Ben right at my side!
With every day that passed I gained more confidence in living with this disease. I know there is no cure and I know my days are numbered, but with Ben I began living each and every day, and not missing a second. As I grew spiritually strong and looked back on the days since that first respiratory arrest, I found certain sadness there.
Each night as I watched Ben sleeping at my feet I wondered how many others there were who needed the same miracles that Ben offered me. I wondered how many others were turned away because they didn’t fit the service dog agencies criteria.
Envisioning 4 Paws for Ability
4 Paws for Ability, Inc. was created with Ben at my side. He was there when I got the incorporation papers in the mail. He was there at the first board meeting, when I looked at those 12 people who would help make my dream a reality. He was at my side when I went to Children’s Hospital to tell a twelve-year-old child who’d had a spinal stroke that left her paralyzed that she would not be turned away because she was a child.
4 Paws grows daily. We’ve watched many dogs become service dogs and have placed many dogs with children. The results have been miraculous. Families have gotten their lives back. In those first years, we saw the following:
- One child with Autism is now safe from the dangers he might face when he wanders because Patches can track him within minutes.
- A woman in New York traveled to 4 Paws, here in Ohio, to get a dog for emotional support. Ben was there when I read the letter, which said she had made her first trip to the store alone, and had no panic attack, but then she wasn’t really alone: Pepper was at her side.
- Katie, a ten-year-old with seizures, slept in her own bed for the first time with Roxie beside her keeping watch. Roxie will bark if Katie has a seizure so Mom and Dad can come to help.
- A mom in Anchorage, Alaska says, “Our family is absolutely overcome by how much Halo has changed our lives. I just wanted to thank you for making our lives so much better, for putting the joy back into our days. You really did. My goal for Leo is just that he can be happier. Halo does that, she makes him happier. I don’t know if I told you this yet or not, but he is sleeping in his own bed the entire night. For the first time in four years.”
With each new ability I lost to MG, Ben learned a new skill to help in that area of need. I credit Ben for saving my life twice.
- The first was when he came to my life as a puppy and brought with him the magic, which gave me the will to fight again.
- The second was after open-heart surgery when I returned home on a morphine pump and a deadly combination of medications left me barely conscious and fighting for life. When the phone rang, Ben, who is trained to retrieve it on command, picked it up and lay it beside me. He then began to bark. It was my dad who called and he knew right away that something was wrong. If Ben had waited for a command from me, the answering machine would have come on and most likely, my nurse would have arrived the next morning to find me dead.
Ben diagnosed with Degenerative Mylopathy
After almost eight years, my Ben was diagnosed with Degenerative Mylopathy, a neurological condition that causes progressive paralysis in the back legs. There is no real treatment and no cure. We spent a horrid week at Ohio State University only to walk away with the words, “There is nothing we can do. Retire him.”
Holding to the hope that it would slow the progression, I followed their advice and retired him. When he walked he dragged his feet and the toenails were ripped open. I saw no alternative. Ben, stepped up to the plate. He had walked beside me as I fought my disease and the lessons he has taught were not to end there.
In April of 2002 I took Ben on a week vacation to experience his final moments of life with joy, and then, with a final walk through the 40 acres of woods which had been his kingdom for most all of his life, I helped Ben return to a place where all dogs run and play, where there are bones growing on trees, and treats fall from the sky.
Ben lives on in the hearts of everyone who met him, yet none so strongly as mine. While other dogs have come to walk beside me, none will ever quite be able to walk in his pawprints, and none will ever fill the gap in my heart waiting to be filled once more when I join him at the “rainbow bridge.”
