Hi! My name is Kiley Bell, and I am 10 years old and in 5th grade. I love swimming, and singing in chorus at my school. I love to hang out with my brother and play video games and watch movies. When I was 8 years old I was diagnosed with Ehlers-Danlos Syndrome, and brittle bones. This means my body doesn’t produce enough collagen. Which basically means my joints are over flexible and loose and I dislocate very easily. I also have frequent body pain and some days I just hurt really badly. I also break bones easily due to my bones being brittle. One time I actually had to have surgery on my hand because a foam football broke it!
I have also been diagnosed with P.O.T.S. (Postural Orthostatic Tachycardia Syndrome), which means when I stand up it stresses out my autonomic nervous system and my heart rate increases and my blood pressure drops. It makes me feel very dizzy, weak, and tired. Sometimes I even pass out. This is very dangerous, especially since I already get hurt very easily.
I am still going through testing to address more issues I am facing. The doctor says I might have more things to conquer in my future, but that’s ok! My whole family is behind me helping me along the way. We just started this process and already the support I have received has been truly amazing. My parents were told by one of my doctors that it might be good for me to get a service dog. They did their research and spoke to my geneticist and everyone agreed a service dog would be a great tool for me and my independence and safety.
My mommy and daddy are trying to raise money to get me a service dog. This dog will be able to help me so much! If I feel dizzy and need to lay down, I can brace on the dog and get to the ground safely, the dog will also be taught to prop my legs up so that my blood pressure can regulate. If I have a fainting spell at school the dog can bark and alert someone to come help me. This means I can be more independent at school! The dog will also be able to help get things for me, especially the times when I have a broken bone and can’t get something myself. The dog will also be able to open doors for me when needed.
This service dog will be a life changing tool for me to have. It costs 4 Paws for Ability between $40,000-60,000 to raise and place a task-trained service dog. My family is raising $17,000 to assist with the cost of my service dog. Please help me gain more independence and set me up for success by donating to my service dog fund. Every little penny counts!
Donations can be made at https://4pawsforability.org/donate-now/. If you make a donation on the website, please make sure that you include my name (Kiley Michele Bell) in the description field. Donations can also be made via check and mailed to
4 Paws for Ability
In Honor of Kiley Bell
at 253 Dayton Avenue
Xenia, Ohio 45385.
In the memo line make sure you put “In honor of Kiley Michele Bell.”
Thank you so much for taking the time to read my story!