Hello everyone this is my sweet baby girl, Alayna, who was diagnosed with epilepsy, absent seizures, and a rare disorder called Sunflower Syndrome, one year ago in December. She is not able to be in the sun without supervision or she has tonic clinic seizures. Sunflower Syndrome is not well understood, but it is characterized as a type of self-induced photosensitive epilepsy. Self-induced behaviors are not willful and triggers can vary from person to person this includes eyelid blinking or forced eyelid deviation towards light producing optimal conditions of stimulation by flickering light such as hand waving at flashing light produced by clouded areas obstructed sunlight.
At this time there is no cure for this disorder that she has. At school, she is only allowed to be in the shade. For an 8 year old who loves to play outside you can imagine how she feels. She has severe migraines and often can only see certain colors with her eyes. I can tell you as a mother I worry about her all the time. I watch her sleep on a camera at night. I want her to live a normal life as a child and not feel scared and alone.
We decided a seizure assistance dog would be good for her in the aspect of alerting before the seizure happens and to assist in behavior disruption when she unknowingly waves her hands, causing the strobe affect that leads to seizures. Behavior disruption might allow Alayna to enjoy some sunshine without seizures. A service dog would allow our whole family to not have to worry so much. I also think this will help her anxiety and make her feel so much more comfortable as well as it will make our entire family feel more comfortable.
It costs more than $40,000 to specialty train a service dog for Alayna’s exact needs, and so our family is reaching out to ask our wonderful friends, families, and community to help us reach our goal of bringing her service dog home. Our family will cover a portion of this cost, $17,000, to secure a service dog for Alayna.
If you are able to make a donation towards Alayna’s service dog, please visit the 4 paws donation page http://www.4PawsForAbility.org
4 Paws for ability
In honor of Alayna Jones
253 Dayton Ave
Xenia, OH 45385
If you are able to donate we would greatly appreciate it. Thank you and God bless.